FMS in other countries...how do we compare?
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Created by vickie lewis

FMS in other countries...how do we compare?

I think it would be great to maybe compare notes with people that have FMS from other countries..are there different medications,remedies,exercise,drs,clinics and books...I hope this will help us all and give some other options....

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  • vickie

    TO ALL MY DEAR FRIENDS WHO I HAVE MEET ON HERE...I HAVE JUST GOTTEN NEWS THAT I AM PRETTY ILL..AT FIRST I THOT IT WAS JUST FM,,THEN FM AND MS BUT IT GOES A LOT DEEPER THEN THAT NOW..I HAVE THREE OTHER BRAIN DIESESE ALSO..LIFE THE LAST TWO WEEKS HAS BEEN VERY VERY ROUGH FOR ME..PLEASE DO NOT FEEL AS I HAVE GIVEN UP ON ALL OF U AS I HAVNT AND I WILL ALWAYS THINK OF YOU AND BE GREATFUL FOR YOU FRIENDSHIP..BUT ON MONDAY I AM DELETING MY ACCOUNT HERE..IF ANY OF YOU WOULD STILL LIKE TO KEEP IN TOUCH I WILL BE GLAD TO GIVE YOU MY EMAIL ADDRESS IF U WRITE TO ME...I WOULD LOVE TO STAY FRIENDS WITH EACH AND EVERYONE OF YOU...MAY GOD KEEP YOU SAFE AND PAIN FREE....LOVE TO ALL OF YOU VICKIE

    10 months ago

  • Clairepie

    I am doing 50% better over all with my medication (I also have joint hypermobility) (Cocodamol, pregablin, diclofenac, trazodone, and meds for the side effects pf my meds lol) and I have had 4 sets of Physio, 3 lots of CBT and Hydrotherapy which rocks, an understanding GP surgery and all this means I am motivated to do pilates each morning and do my physio exercises, it really staves off those bad days! I have fewer now than I did 6 months ago. (plus I am studying for my physics degree which is an amazing distraction!)

    12 months ago

  • Lynne

    Hi I am in the UK and to be honest with you, treatment depends on what area you live in and if you are lucky enough to live in an area where there is a alleged 'specialist' the chance of getting any help is minimal. I will come back at another time to go into it further cos just thinking about it is giving me a headache.

    Hugs to all

    12 months ago

  • Bobbi

    Hi, I am from Pennsylvania in the USA, I am here to find out if other countries have better treatments aqnd also if the universal health plan is as bad as we here in the US, I am for any plan as long as it gives us pain treatment. Thanks for starting this community.

    12 months ago

  • Madaline

    very cool

    12 months ago

  • Madaline

    Hello,Its me from Oregon

    12 months ago

  • John

    I'vr tried all the 'standard' non-pharmaceutical therapies. Nutriuents, Supplements, Accupucture, Shitzu, Liver & Colon Cleanses, Metabolic Typing Diet et. etc. etc. to no net gain.

    I am looking at Dr. Sarah Myhill in the UK possibly. 

    12 months ago

  • Adrian

    Hi everyone Well fibro in the uk is still releative new not many understand it my gp has put me on amitriptilyne, mc contious (morphine) and pre gablin and parachetmol and to be truthful they arent really workin when i last went to see the my gp i had to see a different one and he is was a bit abruprt in what he wants to happen he wants to start cutting down my painkillers complelety start makin me do more excercise i do walking as it is now but god it knocks me about and he wants me to stop using my crutches so really im not much any any better of lol i have seen a phyiso he wants to me go to hdyro therapy pools still waitin to hear abour that got to see specialist nexr week so lets hoped he can help me

    12 months ago

  • starry

    I think this is a great idea I know two doctors that are into reseach and I think some of their trials are in europe.   

    Great idea and love tinkerbell and peter pan,

    One of my favorite quotes that i hold on too is:

    'THINK HAPPY THOUGHTS AND YOU CAN FLY"  by peter pan (and I remember as he and tinker flew up and away!)

    starry

    12 months ago