WeAreFibro.org - The Social Support Network for People Living with Fibromyalgia

Deetzah

Hey,

It has been awhile since anyone has posted on this site.

I am still battling with fibro as we all are. Trying to exercise and taking Serrapeptase. It helps reduce the amount of ibuprofen I have to take but it is pricey!

I wish I could get the natural supplements that I would like to try approved by my insurance. I am on disability and they don't cover crap except stuff that has horrible side effects.

I agree with Andrea: who wants or needs that stuff?

I would love to try a combo of Sam-e and Serrapeptase and a good mulit vit. and vit. C (I have learned it has anti inflammatory effects) and some stuff for pain that I found on a fibro. website called End Pain.

All of that together would cost less than the narcotics my docs are so willing to prescribe to make me an involuntary drug addict.

Ugh!

Just needed to vent.

Lol.

15 months ago

Kayle

But sometimes we don't have a choice. Fibromyalgia sometimes barges in and takes over our lives. It has been that way for me for the last few months. I think I have FMS shoved in the background for now. I need a break from it. I hope to get re-intouch will all my friends here and visit with y'all.

17 months ago

Linda

I have had to deal with pain from early 1990's; originally I took alive to relieve pain and get to sleep; My hands would ache, or be really painfull at night, especially if I had the bedroom a little chilly! I even got some gloves to wear to bed so when my hands were out from under the cover, they would still be covered!  The pain in the knuckles sometimes would wake me up like a bad toothache when my hands were chilly.  It was awfull, since all you wanted to do was sleep.  I would have muscle spasms when I did sleep and this helped me to have a better restful sleep! Then in 2000, I wasn't feeling good; I had tests ran on heart and stomach.. we I was told I had Chrons. The medication I took for it would not allow me to use alive any more.. had to use darvetcette/ Now I drink LIMU and have no pain, discomfort and it has reduced the sswelling I have in muscles and joints too!

Four years ago, I was watching my grandson. the doctor told me to make a choice care for him or see my health just keep getting worse... I did as Dr. said and two years ago I stopped with his care.. after the Limu's brownseeweed nutrient FUCOIDAN has went to work on my body giving it the nutrients it needed my quality of life has changed!

check out http:/discoverlimu.com/lindalimublessings

Other information can be found on www.thelimucompany.com

Hope you all a better day tomorrow; especially if the weather warms up!

\

davocett or darvon for pain.

18 months ago

Andrea

My Dr. tried to get me to take Lyrica and as soon as I saw the side effects, I said "no way".  I don't need sexual dysfunction or weight gain.  I was managing my symptoms through fitness until the last month when depression just took over and I am lucky to get out of bed.  I know how you feel about the panic attacks.  Whatever you do, stay AWAY from Xanax.  It is highly addictive, causes memory loss and the withdrawal can result in death without a hospital stay...I stopped taking it because I KNEW it was causing my memory to go..short-term memory loss...had NO idea until AFTER I weaned..spent 2 weeks in bed having anxiety attacks (caused by the withdrawal), vomiting, etc..THEN decided to research the withdrawal symptoms and found out I could have DIED..and, I FELT like I was having a heart attack...but, always in denial, I just got through it on my own...it was horrible...still suffer short-term memory loss and can't sleep as good as I was on the Xanax, but, I'm currently researching magnesium as a sleep aid.  I went to a naturopathic Dr. one time and she prescribed a wonderful sleep cocktail that included magnesium, so I'm trying to find the right combination because I can't find her or the notes she gave me...ugh...

I also was considering the Reboxitine clinical study until I read the sexual dysfunction side effects of that...no thanks...and INSOMNIA...lol.  why would we want that?  We already suffer with insomnia....What are these people thinking?

20 months ago

Andrea

Has anyone considered investigation of medical marijuana?  I see it just passed in NJ for chronic pain.  I know, as a holistic student,  and a strong advocate against prescription drugs,  I might want to see if it helps.  but why shouldn't it be our choice to use an herbal remedy?  I am all for anything that will work that is natural. 

20 months ago

Lorena

I too would love to find releive without meds but it seems impossible. Water therapy helps alot (if the water is warm). And those Flector patches are great. I have not been able to work in 6 years. I am a very hyper person and love to volunteer at least but i cannot even function through the day. I have 2 kids at home still and they help but trying to get them to understand is hard.
Sometimes the depression sinks in like today and I feel so defeated. I left my hubby after over 20 years of marriage cause i felt like i was holding everyone back. I get mood swings and panic attacks. I don't know what kind of doc to see as the ortho and he is great, i have been seeing him and the pain clinic for about 10 years. It is ridiculous about the disability the stress of being tight for money is killing me. Schools going back I have on in Iraq and one in college, he's in 10th in an early program and a daughter that is a cheerleader in competitins and i have missed so many of their games the last 2 years and they are hurt by it. Sitting in the bleachers for 3 hours or more is unbearable. Before that I spent almost everyday volunteering in the libraries or the kids classrooms now i can't do crap. The doc says now that i basically have to live with it there is nothing they can do. I feel like I should be in a wheelchair at times it gets so bad. Thanks for listening Lorena

25 months ago

Stacey

Hi all,

I was diagnosed in 1995 after endless expensive testing. At the time I was diagnosed at the Mayo Clinic there was absolutely nothing on the market by the FDA to treat any of the difficulties of Fibro. I really like Lyrica but have gained 18 pounds on this. For someone who has always had a thin figure it was hard to deal with this. I also use Cymbalta which seems to hep with the depression and anxiety. I am always reading new books to find out more about this "disease, Syndrome" and find a way to curtail the symptoms and become more active. After being a full-time mom, wife and working a 40 hour week job I am about wiped out by Friday night only to rest on the weekends and start the process all over again. I am not sure I will ever catch up on my sleep. Sometimes I sleep for 12-14 hours and could still crawl back into bed and sleep for a month. I work in a Neurosurgery Clinic and work with pain management so I find out about medications sometimes before they are approved or released. Wish they could just find a cure...

25 months ago