Fibromyalgia Workforce
55 Members
Created by Sarah Little

I absolutely love my job!!!

Do you guys work for love of the job or drag yourselves there because you have to. I think it makes a huge difference. I have to drag myself in sometimes, but usually once I push past the fatigue I'm ok. My nights are very busy and usually go by too fast. My pain levels are always bad at work, but it is usually fatigue that dictates how my night goes. Fatigue makes it hard to concentrate and that is always hard enough with fibrofog. I have to do alot of extra writing that my coworkers do not do because of this. I care for critically ill people and I do alot of double checking on meds ,IV rates, etc.. The nice thing about that is that we all double check things with each other for pt safety because the drugs we use are so powerful and dangerous. We all have our little black books with info in them about  meds, drip rates, cardiac rythyms and so on. Hope you all are fulfilled in your jobs.  Lynnette

35 months ago
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  • Lynn

    I no longer work.  I miss it.  I did not enjoy working until I found a career I enjoyed as a legal secretary.  I was good pay and interesting.  When I had to leave my last job, that was the best job ever - i really loved it.  But by the time I left I was like a walking zombie or whatever, in such pain, could not sleep, probably should not have been driving as everything was a blur. 

    35 months ago

  • Lynnette

    Please don't give up forever. Fibromyalgia will not keep you down forever. It's a matter of working your mind every day with puzzles, magazines, drawing, crocheting-whatever to improve your concentration. I really do fight the fog every day. It's a challenge. I have trouble concentrating on 2 things at once, so I have a great deal of difficulty getting my charting done while I'm working. As a legal secretary, I know if you get to the point where you are ready (and that is different for everyone) you will be able to find things to do on line. Do you all realize that typing and participating on these forums is therapy. Think about that for awhile. I have to go to work.. Love and peace...Lynnette.

    35 months ago

  • Benia

    I do like my job.  I'm a Business Analyst in IT.  The company is great, too.  I'm very lucky. 

    I, too, have issues with concentration and do a lot of writing, but the notes tend to be helpful to me and others anyway, so it's kind of a good balance.  I also read when I can, journal, do sudoku puzzles, play with my new mbira (thumb piano), and create things on Zazzle to sell to others.  I'm all over the place and definitely try to make sure I enjoy whatever time I have as much as possible.  You only get one chance at life, and I'm not going to waste mine wallowing if I can help it. :)

    Lynnette, you are an inspiration.  Thanks for sharing your story here. 

    30 months ago

  • Lynnette

    Thanks Benia. I didn't feel very inspirational lately, but have had miraculous results from a new med (Savella) . 3 short days ago I was in a flare and depression so bad that I couldn't spell my name right. I actually had my doc take me out of work for 3 weeks. He talked me into trying savella. I was quite reluctant because it's similar to cymbalta, which I had a horrid reaction to. This med started out at a low dose and I felt improvement the next day after I started. It can't be a placebo effect because I was sure it wouldn't work. I can now say again with confidence that I love my job and can't wait to return to work. Yeah!!!

    30 months ago

  • Michelle

    I have to work (divorced and live in the SF Bay Area - expensive!), and fortunately I enjoy my job. I manage a very small Visitors bureau, and answer to a Board of Directors.  Most weeks I put in 50 hours.  Luckily, that time is spread between meetings, writing, and communications.  I use a kneeling chair at work (doesn't look very executive and my board hates it - keeps me walking, tho!)    I find I do much better overall having to be somewhere M-F and responsible.

    However, working entails some personal sacrifice on my part.  I give up most of one weekend day to rest and recuperate and many nights am in bed by 8pm.  Most of my colleagues know about the Fibro, but I still hate those fog filled days, having to explain my missing vocabulary. 

    I go back and forth about being honest...most days I don't feel very good, which is monotonous for those around me too.  At least I have a job!!

    30 months ago

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