Fibromyalgia and the Kids
69 Members
Created by Michelle Scarberry

How many kids, their ages & do you require help from others.....

I'd love to get a general idea of how many of us FMS & CFS patients have kids....and how many.  Do you find is hard to care for them and require help from others?  In my own personal experience I find it very challanging...i'd love to hear from others, please share your stories with us!!!

32 months ago
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  • Michelle

    Hello!  I have two children:

    Austin is 5

    Kaylie is 4

    Boy are they a handful.  I find it very stressful having FMS & CFS and trying to be the wonderful mother i long to be.  But none the less, i love my kids to the moon and back!!!! 

    I'd love to hear from other mothers....what are your experiences....

    32 months ago

  • Gina

    I'm on the other side of this discussion I guess. I have one daughter, Cory, who is 15 (she'll be 16 in a few months). She is so helpful to me. She takes care of me and helps with the housework.

    32 months ago

  • Michelle

    i can't wait for the day mine are old enough to take care of me!!!  lol  =)

    32 months ago

  • Peg

    I have two kids, but they are both grown. My son, who just graduated from Highschool is on the Autism Spectrum, he has Asperger Syndrome.  My daughter is 28 years old and lives about 3 hours drive from us. I've been homeschooling my son since he was 8 years old and did so through highschool, using a charter school. There were some rough times, but we made it, even as I got worse and worse, went through two back surgeries, went from a svelt 170 lbs and walking 3 miles every day to now, 240lbs and in a wheelchair. My husband and I have been married for 30 years and he has stuck with me through some mood swings that would have sent the best running for their lives.

    32 months ago

  • Becky

    I have two daughters.  Alexandra who is turning 11 and Marissa who is 8.  And are they a handfull.  Their personalities are totally opposite, and they both are very strong willed.  But, I wouldn't have it any other way.  Having FMS has been very hard on both of them.  Alex understands more than Rissa does, but she worries so much about how I feel, and has increasingly become more upset with my Doctors because they can't fix me.  Rissa is in the stage where she wants to grow up but still wants to be the baby of the family.  She is such a physical person, and always wants to sit or lay with me, which has become very painful.  I finally gave in and hired a nanny/helper of everything, so I am able to spend my good days or hours being with them instead of housework, errands, etc.  I know I am terribly lucky to be able to do this, and with the economy taking its toll on us, this may come to an end. But I am trying to enjoy it while I can.  We have learned to take each day one at a time, cuz you never know how mom will feel when she gets up in the morning.

    31 months ago

  • Michelle

    i loved reading your story becky...i know exactly how you feel!  i wish i could hire someone to come to my house and do the housework etc...that would be so nice.  my mom was coming over and helping me once a week but now her mother, my grandmother, is living with her and she if very elderly and needs her attn 24/7. 

    Like you, i see FMS taking a toll on my kids already as well.  My daughter Kaylie, 4, wants to lay and snuggle with me while im bed bound some days...i feel awful, as if i should be up and playing with my children...but i can't. 

    31 months ago

  • Nicola

    Hi everyone, it is so nice to read what you all said, it helps a little to know that i am not the only one feeling this way.

    I have to admit i have been feeling so low the last few days thinking i am a bad mother because i cannot do the things my son wants me to do with him. And i am telling him he has to be gentle when he wants a cuddle because i am sore to touch, so then he wants to rub or kiss it better. It breaks my heart, because its not how i thought i was going to be as a mother. Even though he is only 5, he is a great little boy, who tries to be good and helpful, and i absolutely love him with all my heart. I wonder what he will think when he grows up, how this will affect his character....

    I have 2 great friends who take him for a few hours now and then, but most of the time i am on my own and the guilt and strain of looking after him by myself is really hard to bear sometimes. 

    31 months ago

  • Becky

    It is so nice to know I'm not in this boat alone.   I have a great support system, but the guilt still keeps me up at nite in tears.  This morning, Alex, 10 going on 18 asked if she could read one of my fibro books.  She said that she wanted to understand it better.  I broke down in tears.  One of the things I have learned is that we are actually going thru a mourning process.  We are loosing the person we once were, and we have to accept that we cannot be the super mom we all envisioned ourselves to be before fibro took over our lives.  It's a day by day process. It is hard enough to explain how we feel to adults let alone little kids.  I found a great way to explain things a while back. But I cant remember if it was on here or somewhere else.  I will look for it  and get back to share it. 

    Gentle Hugs to all

    31 months ago

  • Becky

    I found it.  It was here on this site.  The link is http://www.wearefibro.org/do/discussions/19 or you can search "Spoon Theory".  When I found it I printed it out and shared it with family and friends.  It helped explain so much.  When I shared it with my girls, I used beads (we were making beaded bookmarks at the time).  Now when I say "mommy is all out of beads" they understand a lot better.  Hope this helps.

    31 months ago

  • Buffie

    31 months ago

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