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Its not easy looking your best when everything hurts and even the smallest thing like the label on your bra makes you itch with pain.What are we to do?What can we wear?Why must we agree to wear ugly shapeless clothes just to be comfy?Why arent the fashion designers out there not only looking out for those who suffer from pain and skin issues but also those who have a little extra padding ( yes im plus size and i am fine with it)Well, here it is, a forum to vent all your fashion " WTF".who am i? well, i am a fibro fighter, a sewing maven and a creative go-to gall that has a room full of fashion mages, sewing machines, and alot of ideas on how to my life , especially my closet, comfortable and FASHIONABLE for me and my not so good friend, fibromyalgia.come on in, don't be shy.xoxoxmabelover the next few weeks i will post images and links of clothes that fashionable and yet COMFORTABLE.i am also designing a bra that will help those with wrist issues ( like me)
A place to review books about fibromyalgia, chronic pain, fatigue, diet and other related subjects.
This is a group for fibromyalgia patients who are also suffering from spinal disorders. Some of the many spinal disorders out there are: spinal stenosis, spondylolisthesis, spondylosis, herniated discs, bulging discs, etc. Here is a place to let go and discuss not only the various challenges that we face, but also a place to share treatments that work or don't work. Please also feel free to share any medical articles relating to the topic of fibromyalgia and spinal disorders.
We all know living in New York City is fast paced. Try living in New York City with Fibromyalgia. This is a group for those of us living in the New York City area, to share stories, advice, and possibilities.
This is a group for folks who enjoy knitting! Discussions about patterns, knitting ideas and techniques, etc. Also discussion about the positive impact knitting can have on wellness.Ideas about knitting with chronic pain. Adaptive techniques and suggestions to allow us to enjoy our craft more. All ideas are always welcome!
Exercise is one of the few things EVERYONE agrees is important in controlling our FM. On your worst days, can you imagine that you are on a special team? A Fibro-Olympic Team! Can't you just hear us? We are all there cheering you on! Come and join Team Fibro where you'll find simple ways to get started, build stamina, set goals and support one another as we bring home the gold! Click on discussions and you'll find a section to help you with setting a beginning goal.
This group is about brainwave entrainment as an alternative to relieve fibromyalgia. Brainwave entrainment means the use of special vibrations (sounds and special music) to synchronize the brain with desired mental states. For example we can use fast sounds or music to relax and fast sounds or music to get arousal. It i said that pain is the interpretation of the brain to some stimuli. If we can interfere that stimuli with special sounds, you will get relief from pain. In the next posts I will release several combination of sounds an music so you can share your experiences with the rest of the group.
This Community is being created to add information regarding legislation at the local, state, and federal levels that may effect all Pain Disorder Patients. This information could be regarding Insurance issues, Prescription issues, Medical care, etc. This community is not designed to sway you one way or the other, but just to give you the facts and what is going on. So if you are interested in knowing what is happening in the news, politicaly speaking, or changes in specific laws for those of us dealing with pain disorders, you can check here. I will be sure to put in dates when necessary and links so that if you want to get involved you can. If you have any questions, please message me to my inbox. I won't be checking here for specific questions, I just wanted a place for you to know what is going on out there that might affect you and your medical care.
A community for survivors of abuse to come together, to share, to support and to heal. Be it child abuse or domestic violence, physical, emotional, mental or sexual abuse, all survivors of abuse are welcome. Please remember not to judge or speak harshly about something a member shares. We all have a story that is personal, and it takes a great amount of courage to share it. Let's support each and encourage each other. The scars from abuse will always be there, but the hurt we feel from it may be lessened by sharing our experiences not only with other abuse survivors, but also with fellow fibromites.
This is a place for people to come and share recipes, info and support. It doesn't matter what kind of diet you are following, Atkins, The Zone, Protien Power, even South Beach, Vegan or any other diet that you know helps, come and share recipes and successes and downfalls. Even if you are just thinking of eating healthier, please join and explore.
Members of WeAreFibro.org guest host interview with prominent figures in health, entertainment, and awareness within the fibromyalgia community.
CONTEST ENDED APRIL 24TH.VOTE FOR YOUR FAVORITE HERE! New Poetry Contest!! Poetry Contest: The Most Ridiculous Thing You've Been Told About Your Fibro Experience! Now - April 24th. Tell your story, let off some steam, and get creative! To enter, write a poem (or poems) about the most ridiculous things you've been told about your fibro experience. It can be funny, light-hearted, intense...anything! It's your poem and it's about how you want to express yourself. Then, post your poem in a comment below. Starting April 27th, we'll post a poll to vote for your favorites! Happy writing!
Learn more in this Community about links between Gardasil and fibromyalgia.
I wanted to start a group where we could come and support each other spiritually, no matter what our beliefs or chosen religion, or if we chose to forego any type of religion. Everyone has beliefs dear to them. Many of us, I think, use many avenues for pain control, and ways to keep control in their lives. This forum is for OPEN MINDED folks who want to learn about others and how they cope. I am a Christian who has great respect for all religions. I think an opportunity to learn is a gift we should all recieve and accept. NOTE: No discussions here should try to convert or tell someone they are wrong. Only to listen, share, and grow as intelligent adults.
TN Lovers Welcome!!! I'll write more later!!!
Everyone is welcome to join the Creative Therapy community! Are you an artist, do you dabble in painting or photography? Do you knit, color with crayons, make scrapbooks? Are you a sculptor, do you like to decorate cakes? Do you make your own clothes, write poetry, enjoy decorating your home?This is a community where you can follow assignments or post pictures of your work! You can share a story about how art and creating helps you deal with your condition.(Follow the "Community Posting Instructions". Please do solicit sales of your work on WeAreFibro.org)
12 yrs of suffering one loss after another, researching. pain so bad it surely would kill me,unhealth, a myriad of idiotic MDs and other so called health professionals, discrimination, and almost total withdrawal from life, scams, and treatments that made medieval torture chambers look mild, I gave up, took charge and made myself better. At age 46 I set some goals and made myself some promises. I quit saying "God, why me?" and started asking for the strength to understand. My goal was to get feeling healthier, and to lose 100 lbs by age 50, even if it meant gastric bypass (which I haven't had and don't want). What I did is working, therefore I would like to share it with others. This group will have topics for each step I took and how I decided which things to do. I will use the blog, and article section and invite others to do so also. I am not selling anything, I am instructing in a way to gain control of your illness. Please join me on this journey. NO CURE JUST HOPE.........Lynnette.
I think it would be great to maybe compare notes with people that have FMS from other countries..are there different medications,remedies,exercise,drs,clinics and books...I hope this will help us all and give some other options....
A community on WeAreFibro for vegetarians, vegans and those interested in the lifestyle. Share your thoughts, recipes, etc.