Diagnosing Fibromyalgia
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Created by Stephen Doogan

Diagnosing Fibromyalgia

Any complications with your diagnosis - was it wrong the first time round or did they get it spot on. Either way we'd love to hear about it!

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  • Julie

    I was mis-diagnosed for 2 years when I sought help 26 years ago..... they saw how depressed I was with all the pain so they told me it was the depression that was causing the pain.  I told them they had it backwards, but they were relentless.  It took 2 years of fighting to finally get the diagnosis of fibro.  I knew it wasn't what they were telling me.... I don't know how I got through those 2 years.....it was hell, pure hell.  I was so worn out from the excruciating pain and fatigue, yet I pressed on because I refused to give up.  I was treated like total crap by the medical profession.  Back then, fibro wasn't known as it is today.  I was lucky I got a diagnosis after 2 years, actually.  If nothing else, at least it gives credence and validity to my condition, instead of labeling me as a whiney female crybaby, looking for attention.  Today I have a wonderful doc who also suffers from chronic pain and other ailments.....he knows what it's like to be on the other side of the stethescope.  We work as a team, with my well being as the goal....  he has helped me alot just by understanding me and caring for me. 

    37 months ago

  • kansasgal

    I was diagnosed with myofacial pain syndrome in 2006....and then in 2007 diagnosed with fibromyalgia. The Dr. who did the fibro diagnosis was very cold and rude. He poked the tender spots so hard that I started to cry. He typed answers to his questions in a laptop and then turned and said,"Yeah, you have all of the tender points....you have full-blown fibromyalgia. I asked him what we were to do. He pointed at me and said, "YOU have to start exercising." I told him I have a bad knee and it is hard for me to walk much. He looked at me sternly and said "Well, you can either exercise or sit around and hurt....your choice". Well, I was so frustrated that I was crying. He finally softened a little, put his hand on my shoulder and said "Just try".....then he walked outta the room. Needless to say, I will never to back to HIM.

    42 months ago