WeAreFibro.org - The Social Support Network for People Living with Fibromyalgia

Leela

on a bad day, i feel tired, cranky, sore, and like my husband does not understand what fibro is all about....i just know what i feel and it is not always good, even though trying to stay positive...good luck to you ladies out there.

31 months ago

Sharon

On a bad day even my hair hurts, It hurts to lay down , it hurts to get up. I can not remember anything and the fog takes over. People get angry cause "you looked fine yesterday" I get tired of trying to educate them when I am in such pain. It is hard to stay positive when I get like that. I sometimes try to get up and act as if , but fibro usually wins

31 months ago

Sharon

On a good day I am full of happiness rejoicing in being pain free, well ok not totaly free but enough to get moving. I always try and go out on these days , I never use my handicapped sticker on good days I will even park as far as I can just to get in the walking that I can not always do. I love to talk to people and socialize , the fm has taken that from me allot But I make sure on the good days I talk to everyone , I have even decided to volunteer at a local hospital 1 day a week . I have to learn not to over do on the good days . It feels as if the sun shines brighter on these days, moon rises higher and all is right with the world

31 months ago

moniquemarie

On a bad day I feel that the whole world has abandoned me. No friends or family I can call and I feel totally alone. I try to do activities or stay positive, but it just does not seem to work. At times I feel that the mental pain that I have from the fibro is actually worse then the physical pain that I deal with. I feel like a lonely child who sits on the sidelines at recess and no one notices me. I get really depressed and I know that does not help. I get so upset that I feel like crying but by now I fear that I do not have anymore tears to cry. The bad days are when I feel that I am truely alone and all I have is me to depend on. After being depressed, I get really angry. What did I do to get fibro? Why is it that I am taking almost 50 pills a day to to help my immune system, skill off bacteria, and increase my nutrients and supplements? I open my cupboard of drugs and I feel like just taking them out and throwing them across the room. Worst of all, I have issues with my bowels. Do you know how embarrassing it is to have to use the restroom almost constatnly? Then having people just not understand why? After being angry I get defiant and just do whatever because I just don't care anymore. Then at the end of the day, it goes back to depression because then I realize that for one whole day I refuse to take care of myself and I know that I won't be getting better if I continue to do that.

31 months ago

moniquemarie

Good Day: When I am able to do something even if it is small, I feel like I am on the road to recovery. When I am able to get out and have a social life, I feel great even if I do not feel well. I am able to feel that I am strong and will be able to kick this fibro right out of me. I smile a lot more. I have a more positive outlook on life. I look out into the world and I notice even the smallest things and I appreciate the fact that I was able to walk outside and look at nature. I am able to talk more intelligently because my fibro fog is not there. I laugh at myself when i do stupid things, I am able to eat. I feel so happy when I am able to eat a meal and keeping it down. That is such a good feeling, having your stomach full and I feel calm and peaceful. I have hope.

31 months ago

danielle

On a good day there is hope. There is enough strength to do the things I desire to do. I notice the beauty in the smallest of things, and I am content with where I am at in life. This doesn't mean that the pain and fatigue don't creep in, they may, but they don't consume me. I am free to see myself as an individual first, the illness does not define me. I spend time with loved ones, I laugh, I sing, I play, I smile. I feel whole.

31 months ago

danielle

This is a poem I wrote recently on a bad day. I felt I had hit the bottom of the barrel and I was so tired of trying to fight the pain and tiredness. This poem expresses how frustrated I can become on a bad day and my inability  to remain positive.when I feel as though the fibromyalgia is controlling every aspect of my life. (the "you" I refer to in the poem is the FMS)

The fire is dying,

The embers breathe their last.

I have waited so long,

Held on to something which wasn't mine.

And now you win.

I have no strength to fight you.

You have consumed all that was left,

And I am a hollow shell of a being.

I want to shout out in anger,

But I am tired,

And my voice is too weak.

You win, I concur;

You always came first.

And here I lie,

A shattered fraction of the whole.

I am too tired to fight.

31 months ago

Anna

On my worst days I am in bed, in a dark room, trying not to cry, because the puffy eyes and congestion just make everything worse.
Every little (normal) noise makes my body jump, the ubiquitious aching/throbbing/stabbing pain saps all my energy. I can barely lift my head. I can't stand for longer than a minute or two.
If I try to "tough it out" I get a migraine and suffer even more until I vomit, then crawl back to bed, weaker than a newborn kitten, and pay the price for even longer.

On my bad days I feel as though I have the flu, at the 102 degree point, perhaps I am not in bed, but I am on the couch or in a chair, and not much is getting done in between the rests. I can just about get my stretching done.

On my good days I feel like the fever is "only" aroung 100 degrees and I am grateful that the pain is manageable, and I am able to walk. I play catch up with work & cleaning, trying to remember not to overdo it, lest I lose another chunk of time to paying the price for it. I can do stretching and lite exercise. I feel absurdly happy when the day is sunny and I feel "good".

On my great days I can go for walk, or out to the park with my granddaughter, perhaps a little shopping

31 months ago

Lynnette

This is my entry. I can't get the doggone thing to paste so here is a link. Grr, stuff like this makes bad days.

http://www.slide.com/r/hD05GNYK3T-sVhKBRU-qKbDq727hYG9i?previous_view=lt_embedded_url

By the way girls, great entries. This one is going to be hard to judge for sure.

31 months ago

Cheryl

Well on good days (which it has been a long time since I felt this way) I feel like I can fly, my mind is like a sunny day I can remember things with ease, there is a spring in my step, I feel free and feel " human" healthy and have energy to do stuff.

On bad days I feel like I got run over by a mack truck, there is no energy in any cells in my body. I feel so weak and tired it gets to the point that I get tired from just eating, and the pain in every cell I feel a burning, spasum going though out my body and feel raw and irratated all inside. The fog is like a very foggy day or like a really bad blizzard where you can't see 1 inch infront of you. My mind is like a locked filing cabnet and I don't have the key. Some times I can jiggle it loose to recall a peace of information.

If I can figure out how to upload a picture of a good day and a bad day I will but a picture taken in the spring or summer where things are green, growing and alive vs. a winter picture where things look dead and skies are gray.

30 months ago