ive been sick for 3 years and doctors could never find whatwas causing all my probs, the only thing that ever changed was my white blood cells were high.. the pain is like no other ive ever had. i dont have much strength left in my legs and the mucels are disappearing before my eyes. it makes me sad to see my body change and i cant stop it. tryed lots of medication and havnt really found one that suits.. my brain fog is hard as iam trying to do my 4th diploma in welfare. there is lots of stuff i could write down but that would take to long and not that good at typing any more... regards nicole
Are you getting your diploma through a university? If yes, you can use the Disability Center. With a letter from your DR you can use their services which would help so much! My hubby has Myofasial Pain Syndrome and is blind and they have helped in so many ways and not just because of his eyes. If you have a great University they may even have an aid to help you type or buy the software.
I had been trying to get a degree before my hubby was getting his Masters and he turned me onto the services most schools have world wide. It was hard at first to ask for help but it was worth getting good grades.
I have been sick for about the same amount of time and also have had no help with pain but seem to have a high white blood cell count a lot! You would think that with somany of us suffering insomany places we would find some help!
I have a bath every night and try and walk every day. I listen to a relaxation recording before I go to bed and I meditate (try to anyway). I take magnesium and multi vitamins and herbal sleeping tablets. Positive thinking, affirmations and gratitude help, especially on days when you feel like absolute shit.
I have been copying on and off, mostly off. I started a new job just after i was diagnosed and some days it is so hard to get going, I just won't to stay in bed and forget about everything. I have been on efexor for about 12 years for depression, so the dr put up my dose to see if that helped. It didn't. I am now taking efexor and lyrica and the pain is getting worse not better. I had a massage last night and thought i may feel a bit better today but no such luck. With my new job i have an end of week chat about how i am going and this week I was told that i seem to be having a problem maintaining information. No kidding! They don't know that i have fibro and i am not about to tell them. I hate having this. I have had medical problems on and off for most of my life and now this. Life sucks and i' tired.
nicole
Erin
Justine
Marilyn